Discussions tagged “cystinuria”

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cystinuria
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Has anyone had success with Thiola 100mg Tablets for cystinuria? My experience so far and some questions

I was recently prescribed Thiola 100mg Tablets to manage my cystinuria, which makes me prone to kidney stones. I've been taking them for about a month now, and while I haven't had any severe side effects like the ones listed in the drug information, I've experienced some mild stomach upset and a strange metallic taste in my mouth. It's a bit tough to swallow, given that this is a lifelong treatment for what to me is an invisible health issue. I am hoping someone has some insights or even just some words of encouragement. Either way, I would really appreciate hearing others' experiences with this medication.

cystinuria
kidney stones
Thiola
kenneth_perez · 4/18/2026
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54

Anyone on here take Tiopronin 300mg DR Tablets for cystinuria? What's your experience?

I've recently been diagnosed with cystinuria and my doctor prescribed Tiopronin 300mg DR Tablets. I've read about the potential side effects, which are a bit concerning, especially the serious ones. I'm wondering if anyone here has experience with this medication? How has it worked for you? Have you encountered any side effects, and if so, how did you manage them? Any tips or advice would be greatly appreciated. I'm curious to know about the long-term effects as well. Has anyone had any issues with kidney function or other complications after prolonged use?

cystinuria
Tiopronin
kidney stones
lauren_knight · 4/18/2026
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last active 4/18/2026
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31

Has anyone else had trouble with erectile dysfunction while taking Tiopronin (Thiola EC 300mg DR) for cystinuria? I feel like I'm alone!

I'm new to this group, so I hope this is the right place to ask. I've been taking Thiola EC 300mg DR for about six months now, and I've noticed some disturbing changes in my body. I've been experiencing erectile dysfunction, which I've never had before. The side effects listed on the package include erectile dysfunction, but nothing anyone is talking about. Is anyone else experiencing the same issue? I've been feeling really down about it, and I'm not sure if I should talk to my doctor about changing my medication or if this is just something I have to deal with. Any advice or shared experiences would be greatly appreciated. Has anyone with cystinuria found a way to manage the side effects of thiola without experiencing erectile dysfunction?

cystinuria
tiopronin
Thiola EC 300mg DR
justin_robertson · 4/18/2026
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last active 4/18/2026
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